RHOC star Meghan King Edmonds reveals her 13-month-old son Hart has irreversible brain damage: 'I pray for a miracle'
Meghan King Edmonds wrote a blog post about her 13-month-old son Hart's brain condition and said, "I do not see his diagnosis as anything but a gift."
Real Housewives star Meghan King Edmonds has written a blog detailing that her 13-month-old son has an "irreversible brain damage.' Titled 'My Hart', Edmonds shared that her son Hart has “minor Periventricular Leukomalacia on both sides of his brain" and is "at risk for being diagnosed with Cerebral Palsy".
"Hart has irreversible brain damage, it’s called PVL. From the minute he was born I knew something was different with Hart. The nurses struggled to straighten his legs to measure his length. He suckled hard, shallow, and often until I bled and he spit up black. … Well, I knew. I always knew. I just knew," she wrote in a blog.
Periventricular leukomalacia (PVL) is a softening of white brain tissue near the fluid-filled chambers in the brain, according to Cedars-Sinai.
She added, "I immediately called Jimmy to tell him. He was surprised, which surprised me. Then I called Missouri First Steps to get him enrolled in the therapy he’d been previously denied due to only having very minor – if any – developmental delays, but now his diagnosis qualified him. I then called each one of my family members individually in order to give them the respect to grieve (because I know my son affects many more people than just my husband and myself)."
The 34-year-old star also noted that she doesn't see the diagnosis as anything but a gift.
Edmonds added, "I explained to Jimmy how we are not somehow compromised or punished for having a child with special needs (whatever that may or may not mean!), we are BLESSED. I will go on about this another time but just know that I do not see his diagnosis as anything but a gift: we were chosen to take on this special person. I truly feel as if we’ve doubled down and won the underdog hand. Truly."
She concluded her blog with, "I pray for a miracle and I grapple with how to navigate his life. Thirteen days after his diagnosis I finally put these thoughts to paper. This is a heavy challenge as a mother: where do we go from here? This is where: one foot in front of the other."