Adalia Rose Williams: YouTuber with Benjamin Button syndrome BRUTALLY trolled before death at 15
After a 15-year old fight against Hutchinson-Gilford progeria syndrome, Adalia Rose Williams passed away on January 12, 2022. Weeks before death, she shared an emotional post on Instagram and captioned it with one of Bazzi's songs. "Too young to see tomorrow, Too young to know it hurts/Found love in empty bottles, I guess we'll never learn," she wrote.
Adalia was popular on social media for her battle against the rare disease and the energetic dance videos she shared on YouTube. The news of her death was shared by her family via an Instagram post. The post was captioned, "January 12, 2022 at 7pm Adalia Rose Williams was set free from this world. She came into it quietly and left quietly, but her life was far from it. She touched MILLIONS of people and left the biggest imprint in everyone that knew her."
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The post further read, "She is no longer in pain and is now dancing away to all the music she loves. I really wish this wasn’t our reality but unfortunately it is. We want to say thank you to everyone that loved and supported her. Thank you to all her doctors and nurses that worked for YEARS to keep her healthy. The family would now like to mourn this huge loss in private."
Back in 2012, Adalia had created her Facebook page when she was just five years old. She and her family received tons of virtual love and support but also a substantial amount of hate in the form of cyberbullying and trolling. Adalia used to perform for an audience of over five million viewers, however, there were thousands who would insult her and her appearance with little to no regard for the rare condition she was battling. The hate had often forced Adalia's family to disable her page. Adalia's mother Natalia Amozurrutia had once said, "I will turn blue with saying that – educate, educate your kids" indicating the bullying and trolling that happened with her daughter."
A fan of Adalia from Maine told NYC Bay Area News, "There are people who are putting sexual captions on pictures of a 5-year-old, and that is allowed? They are actually saying things about wanting her dying, wanting to hurt her, wanting to deface her."
Also known as the real-life Benjamin Button disease, Hutchinson-Gilford progeria syndrome is a premature aging syndrome that causes rapid premature aging, no body fat, hair loss, joint pain, among others.